What a chaotic
morning.
Our cleaner came as
usual. I had to tell her my news & prognosis.
Then the “End of Life”
team came to make an assessment of our needs. Apparently, getting up in the
morning isn’t until 9.30-10am, a bit late for me. I’d already made the strenuous
effort, with the Fox’s help, to get up nearer 6.30am.
However, in future
they should getting me up, breakfasting. In future I should get the odd bed
bath so the dressings shouldn’t get so wet. They will also change sheets, do
the washing & hang it up to dry. That will help. They’ll also help with
putting me to bed. They don’t do ironing but our cleaner is happy to help with
that.
Next came the
district nurses to change my dressings. The one who came today only saw m a few
days ago, but had to admit I was already looking more tired, weaker. We’re both
coming to the conclusion you can see the reduction in my strength almost daily
now.
It doesn’t help that
I’m losing my appetite now. The last couple of meals I haven’t been able to
polish off entirely but it is not because of the quality of the Fox’s culinary efforts.
It’s just my appetite, mixed with my excessive tiredness. It is increasingly looking
like the oncologist may not be so far of in the estimate of my remaining time.
This last week I’ve lost best part of half a stone in weight – not a good sign.